Insulin is a lifesaving medication needed for survival of people living with type 1 diabetes. Despite being used for 92 years to treat type 1, millions in the world don’t have access. The 100 Campaign is a movement founded by insulin access advocates working to mobilize the global action needed to achieve 100% access by the 100th anniversary of insulin’s first use. This project aims to 1) amplify and humanize the voices of those from the around the world who are living with diabetes 2) share first-hand the barriers that many experience 3) foster a global community 4) low cost advocacy tool.
Topical focus:
Country:
What locality or neighborhood will your project focus on?
the project will take place globally and virtually
Describe the specific population with whom you will be working.
We will be working with a diverse group of people living with diabetes around the world, but particularly those in developing countries. These communities are often less visible, and people living with diabetes and supportive of diabetes who are discussing diabetes in a new way – that typically does not receive much attention. These populations are important to us because they tell the story best and shine a light on the issue of insulin from a human rights perspective – which is very new. The target population’s internet/computer literacy is moderate – most will be connected to diabetes clinics or foundations that have access to internet and computers.
Who else will be on your team to help implement the project?
The following individuals networks have promised to engage with the project and to share our message:
Ganemosle, Dominican Republic @ganemosle http://aprendiendovivir.org/portada/
Nigerian Online Diabetes Community, @theNGDoc Nigeria http://www.ngdocblog.com/
Manny Hernandez from TuDiabtes and EstuDiabetes (English/Spanish) http://tudiabetes.org
Mi Diabetes Online, Spain www.midiabetesonline.com
Santé Diabéte, Mali https://www.facebook.com/pages/ONG-Sant%C3%A9-Diab%C3%A8te/145164382217690?fref=ts
James Stout @jamesstout www.insulinandembrocation.com/
Elizabeth Rowley @t1international http://t1international.com/
What kinds of news, stories and other content will be created?
The primary medium will be insulin access video stories of 3 minutes or less. This includes barriers and struggles they might experience within their country. We will also ask them to make a pledge to commit to taking particular actions to help raise awareness around the issue of access to insulin. The messages from these videos will be edited into one longer video that will showcase the diversity of issues being faced in terms of barriers to insulin access around the world. This video will be released on World Diabetes Day 2014 to bring the issue of access to insulin into the spotlight. The video will be made available on 100campaign.org and social media and to download for those who want to use it for advocacy/awareness. Clips will also be selected and shared targeting global leaders.
What technologies and digital tools do you plan to use in the trainings?
Describe the connections that you or your organization have already established or plan to establish that will contribute to the success of the project.
Via T1International, we have already collected stories and pledges from about 15 youth leaders from International Diabetes Federation Young Leaders network. From these interview we are putting a short “teaser” video which we are using to encourage other groups to contribute their voices. With this “teaser” we will approach many other national networks (some listed above) in Africa, South Eeast Asia and Latin America and encourage them to contribute to this project.
How many participants do you think will be trained in your project?
We are planning on creating “how to” videos and media tips toolkit that will go along with this project and will be made available to everyone who wants to contribute to this project. This training will also include a webinar session. Our end goal is to get 100 videos, so we hope to train a minimum of 100 participants who will share the experience with their respective communities.
Describe which technologies, tools, and media you will focus on when training participants.
The focus will be using low-cost media technology (phone or computer camera) to create emotional and affective videos. We will be using mobile phones, computer cameras, online video editing software (such as wevideo) and hopefully a few small handheld video cameras we can provide to specific participants.
Describe the facilities where you will hold the workshops.
These workshops will all be online. Most items can be downloaded if there is not access to high-speed internet. We will use skype or gchat or gotomeeting or similar webcasting software. These are available for computers or mobile phones.
What is your current relationship with the community with whom you plan to work? What makes you the most appropriate individual or organization to implement this project?
Through our work the last decade we are connected to diabetes communities in 15+ countries who experience access to insulin issues and who are motivated to engage in this project. We are already established as diabetes advocates who through our experiences, either living with diabetes and/or working in and supporting diabetes communities, are most interested in amplifying the voices of those most affected by barriers to access to insulin. We are looking for a way to approach the problem in a different, proactive way. We are not affiliated with the larger diabetes organizations and think we bring a unique perspective to the field – one of empathy and action. The communities we are currently working with are well aware of this.
What specific challenges do you expect to face when planning and implementing your project?
The main concern we think we will face in this project is video quality and quality of content. As we are asking participants to make their own videos – we have to rely on them for their content. We hope to address this issue with the training materials that we will provide online, and when appropriate via webinar sessions to help each participant maximize their video’s potential. Another challenge we expect to face will be the time commitment of participants. One way we will look to overcome this is by going through organizations to collect the majority of our videos. This is to ensure both support for participants’ content as well the technical support they may need to make the videos.
How will you measure and evaluate the project’s impact, specifically: your primary participants, the wider regional community, or the global digital community?
Number of participants
Number of indivudal diabetes communities engaged
Number of countries or
Success = A total of 100 or more videos submitted
We will track selected organizations and see how they were able to use this advocacy tool in their work in raising awareness around access to insulin in their country.
Once the video is launched on World Diabetes Day, we will also measure success by the following:
Response from Ban Ki Moon (WHO) & other global leaders and national on World Diabetes Day to keep access to insulin on the agenda
Number of video screenings around the world
Number of shares and views of the video
Number of “likes” or “comments” on the video on social media
If your project were to be selected as a Rising Voices grantee, what would be the general timeline of project activities in 2014?
1 May 2014 – Begin preparation on Video training toolkit for website
2 May 2014 – Begin creating video Portal for website
3 June 2014 – Finalize collection of 1st round of videos for teaser
4 July 1st – Teaser video launched using the interviews we have collected to that date. Select videos also posted to the website (video submission is 2 months until Sept 1st)
5 July 1st – Video training toolkit will also be launched on website
6 Every 2 weeks from July 15th to November 1st a clip from a video is selected and shared on social media & will target key leaders in global access to medicines to engage and keep interest throughout the life-cycle of the campaign
7 Videos will also be shared Sept 1st to November 13 to continue momentum and count down to release of video of 100 Voices on World Diabetes Day 2014
8 October 2014 – Online calendar created to publicize where the video will be shown on WDD & 10 min video of “100 Voices” edited
10 Final video of 100 Voices video shared on WDD 2014
Detail a specific budget of up to $2,500 USD for operating costs.
Toolkit Editor, Layout and Design $200
Translation fees for Toolkit and Website $300
Website upgrade and tools for easy upload of videos $300
Purchase of 2 Pocket Camcorders $400
Travel to one conference or organization to collect stories and provide training $600
Upgraded editing software for Editor of final video $100
Besides the microgrant funding, what other support can Rising Voices provide for your project to ensure its success?
We would be very interested in getting the word out about our project – and screening our final video.
Contact name
Molly Lepeska
Organization
100 Campaign